03/18/2025 03:15 PM House HEALTH & SOCIAL SERVICES
| Audio | Topic |
|---|---|
| Start | |
| State Medical Board | |
| HJR9 | |
| HB14 | |
| SB60 | |
| Adjourn |
+ teleconferenced
= bill was previously heard/scheduled
| + | TELECONFERENCED | ||
| *+ | HJR 9 | TELECONFERENCED | |
| += | HB 14 | TELECONFERENCED | |
| + | SB 60 | TELECONFERENCED | |
| + | TELECONFERENCED |
ALASKA STATE LEGISLATURE
HOUSE HEALTH AND SOCIAL SERVICES STANDING COMMITTEE
March 18, 2025
3:22 p.m.
DRAFT
MEMBERS PRESENT
Representative Genevieve Mina, Chair
Representative Zack Fields
Representative Donna Mears
Representative Mike Prax
Representative Justin Ruffridge
Representative Rebecca Schwanke
MEMBERS ABSENT
Representative Andrew Gray
COMMITTEE CALENDAR
CONFIRMATION HEARING(S):
State Medical Board
- HEARD
HOUSE JOINT RESOLUTION NO. 9
Urging the United States Congress to extend enhanced tax credits
for health insurance premiums under the Affordable Care Act.
- HEARD & HELD
HOUSE BILL NO. 14
"An Act repealing programs for catastrophic illness assistance
and medical assistance for chronic and acute medical
conditions."
- MOVED HB 14 OUT OF COMMITTEE
SENATE BILL NO. 60
"An Act establishing May 12 as Myalgic Encephalomyelitis/Chronic
Fatigue Syndrome Day of Recognition."
- HEARD & HELDCONFIRMATION HEARING(S)
- HEARD
STATE MEDICAL BOARD
- HEARD
HOUSE JOINT RESOLUTION NO. 9
Urging the United States Congress to extend enhanced tax credits
for health insurance premiums under the Affordable Care Act.
- HEARD & HELD
HOUSE BILL NO. 14
"An Act repealing programs for catastrophic illness assistance
and medical assistance for chronic and acute medical
conditions."
- MOVED HB 14 OUT OF COMMITTEE
SENATE BILL NO. 60
"An Act establishing May 12 as Myalgic Encephalomyelitis/Chronic
Fatigue Syndrome Day of Recognition."
- HEARD & HELD
PREVIOUS COMMITTEE ACTION
BILL: HJR 9
SHORT TITLE: EXTEND AFFORDABLE CARE ACT TAX CREDITS
SPONSOR(s): REPRESENTATIVE(s) MINA
02/12/25 (H) READ THE FIRST TIME - REFERRALS
02/12/25 (H) HSS
03/11/25 (H) HSS AT 3:15 PM DAVIS 106
03/11/25 (H) -- MEETING CANCELED --
03/18/25 (H) HSS AT 3:15 PM DAVIS 106
BILL: HB 14
SHORT TITLE: REPEAL CATASTROPHIC ILLNESS/MED ASSIST
SPONSOR(s): REPRESENTATIVE(s) STAPP
01/22/25 (H) PREFILE RELEASED 1/10/25
01/22/25 (H) READ THE FIRST TIME - REFERRALS
01/22/25 (H) HSS, FIN
02/18/25 (H) HSS AT 3:15 PM DAVIS 106
02/18/25 (H) Heard & Held
02/18/25 (H) MINUTE(HSS)
03/11/25 (H) HSS AT 3:15 PM DAVIS 106
03/11/25 (H) -- MEETING CANCELED --
03/18/25 (H) HSS AT 3:15 PM DAVIS 106
BILL: SB 60
SHORT TITLE: ESTABLISH ME/CHRONIC FATIGUE SYNDROME DAY
SPONSOR(s): SENATOR(s) TOBIN
01/24/25 (S) READ THE FIRST TIME - REFERRALS
01/24/25 (S) HSS
02/11/25 (S) HSS AT 3:30 PM BUTROVICH 205
02/11/25 (S) Heard & Held
02/11/25 (S) MINUTE(HSS)
02/13/25 (S) HSS AT 3:30 PM BUTROVICH 205
02/13/25 (S) Moved SB 60 Out of Committee
02/13/25 (S) MINUTE(HSS)
02/14/25 (S) HSS RPT 5DP
02/14/25 (S) DP: DUNBAR, HUGHES, CLAMAN, GIESSEL,
TOBIN
02/24/25 (S) TRANSMITTED TO (H)
02/24/25 (S) VERSION: SB 60
02/26/25 (H) READ THE FIRST TIME - REFERRALS
02/26/25 (H) HSS
03/11/25 (H) HSS AT 3:15 PM DAVIS 106
03/11/25 (H) -- MEETING CANCELED --
03/18/25 (H) HSS AT 3:15 PM DAVIS 106
BILL: HJR 9
SHORT TITLE: EXTEND AFFORDABLE CARE ACT TAX CREDITS
SPONSOR(s): REPRESENTATIVE(s) MINA
02/12/25 (H) READ THE FIRST TIME - REFERRALS
02/12/25 (H) HSS
03/11/25 (H) HSS AT 3:15 PM DAVIS 106
03/11/25 (H) -- MEETING CANCELED --
03/18/25 (H) HSS AT 3:15 PM DAVIS 106
BILL: HB 14
SHORT TITLE: REPEAL CATASTROPHIC ILLNESS/MED ASSIST
SPONSOR(s): REPRESENTATIVE(s) STAPP
01/22/25 (H) PREFILE RELEASED 1/10/25
01/22/25 (H) READ THE FIRST TIME - REFERRALS
01/22/25 (H) HSS, FIN
02/18/25 (H) HSS AT 3:15 PM DAVIS 106
02/18/25 (H) Heard & Held
02/18/25 (H) MINUTE(HSS)
03/11/25 (H) HSS AT 3:15 PM DAVIS 106
03/11/25 (H) -- MEETING CANCELED --
03/18/25 (H) HSS AT 3:15 PM DAVIS 106
BILL: SB 60
SHORT TITLE: ESTABLISH ME/CHRONIC FATIGUE SYNDROME DAY
SPONSOR(s): SENATOR(s) TOBIN
01/24/25 (S) READ THE FIRST TIME - REFERRALS
01/24/25 (S) HSS
02/11/25 (S) HSS AT 3:30 PM BUTROVICH 205
02/11/25 (S) Heard & Held
02/11/25 (S) MINUTE(HSS)
02/13/25 (S) HSS AT 3:30 PM BUTROVICH 205
02/13/25 (S) Moved SB 60 Out of Committee
02/13/25 (S) MINUTE(HSS)
02/14/25 (S) HSS RPT 5DP
02/14/25 (S) DP: DUNBAR, HUGHES, CLAMAN, GIESSEL,
TOBIN
02/24/25 (S) TRANSMITTED TO (H)
02/24/25 (S) VERSION: SB 60
02/26/25 (H) READ THE FIRST TIME - REFERRALS
02/26/25 (H) HSS
03/11/25 (H) HSS AT 3:15 PM DAVIS 106
03/11/25 (H) -- MEETING CANCELED --
03/18/25 (H) HSS AT 3:15 PM DAVIS 106
WITNESS REGISTER
BRENT TAYLOR, MD, Appointee
State Medical Board
Anchorage, Alaska
POSITION STATEMENT: Testified as appointee to the State Medical
Board.
REPRESENTATIVE GENEVIEVE MINA
Alaska State Legislature
Juneau, Alaska
POSITION STATEMENT: As prime sponsor, presented HJR 9.
JARED KOSIN, President and CEO
Alaska Hospital and Healthcare Association
Anchorage, Alaska
POSITION STATEMENT: Testified in support of HJR 9.
LORI WING-HEIER, Director
Division of Insurance
Department of Commerce, Community & Economic Development
Anchorage, Alaska
POSITION STATEMENT: Answered questions regarding HJR 9.
AMBER LEE, Owner
Amber Lee Strategies
Anchorage, Alaska
POSITION STATEMENT: Testified in support of HJR 9.
TERI TIBBETT
Alaska Re-entry Partnership
Juneau, Alaska
POSITION STATEMENT: Testified in support of HJR 9.
KATHARINA WOOFTER, Life and Health Insurance Agent
Anchorage, Alaska
POSITION STATEMENT: Testified in support of HJR 9.
TREVOR STORRS, President and CEO
Alaska Children's Trust
Anchorage, Alaska
POSITION STATEMENT: Testified in support of HJR 9.
ARIANE KELSEY, Senior Manager
The Alaskan AIDS Assistance Association
Anchorage, Alaska
POSITION STATEMENT: Testified in support of HJR 9.
ELIZABETH NEWELL, representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of HJR 9.
SHELLIE GOODEN, representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of HJR 9.
SENATOR LÖKI GALE TOBIN
Alaska State Legislature
Juneau, Alaska
POSITION STATEMENT: As prime sponsor, presented SB 60.
DAVID PENN, MD, The Alaska Hospitalist Group
Anchorage, Alaska
POSITION STATEMENT: Testified in support of SB 60.
HOLLIS MICKEY, representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of SB 60.
SALLIE REDISKE, DPT, representing self
Homer, Alaska
POSITION STATEMENT: Testified in support of SB 60.
MERCEDES HARNESS, representing self
Homer, Alaska
POSITION STATEMENT: Testified in support of SB 60.
MEGAN DAVIES, MD, representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of SB 60.
SUSAN SHARE, representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of SB 60.
SIMONETTA MIGNANO, representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of SB 60.
ENZINA MARRARI, representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of SB 60.
JAYBIRD OLIVER, representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of SB 60.
FRANCESCA DUBROCK
representing self
Anchorage, Alaska
POSITION STATEMENT: Testified in support of SB 60.
DONNA ADERHOLD, representing self
Homer, Alaska
POSITION STATEMENT: Testified in support of SB 60.
ACTION NARRATIVE
3:22:48 PM
CHAIR GENEVIEVE MINA called the House Health and Social Services
Standing Committee meeting to order at 3:22 p.m.
Representatives Prax, Ruffridge, Schwanke, Mears, and Fields
were present at the call to order.
^CONFIRMATION HEARING(S)
CONFIRMATION HEARING(S)
^State Medical Board
State Medical Board
CONFIRMATION HEARING(S
State Medical Board
3:23:36 PM
CHAIR MINA announced that the first order of business would be
the confirmation hearing for the governor's appointee to the
State Medical Board.
3:23:43 PM
BRENT TAYLOR, MD, testified as appointee to the State Medical
Board. He provided a history of his education and clinical
experience. In response to questions from Representative Prax,
he confirmed that he began serving on the board last May and is
the president. He shared that
he sees the board's main functions as policing the medical
community, helping to ensure patients' safety, following
guidelines from statutes, and addressing patients' concerns.
3:26:44 PM
DR. TAYLOR, in response to questions from Representative Mears,
responded that the board is currently addressing the following
issues: licensing for physicians, autonomous practice for
physician assistance, and licensing for nurses. He said that
the main focuses of the board are credentialling and insuring
healthcare providers. He said that the board is asked to
provide an opinion on some issues.
3:29:11 PM
DR. TAYLOR, in response to questions from Representative
Ruffridge, outlined that the board's role is to follow
guidelines from statutes and regulations, and its foremost goal
is to provide guidelines to ensure that they have the best
practices available in a collaborative manner. Responding to a
follow-up question regarding a cooperative or collaborative
practice agreement, he said that this occurs on a case-by-case
basis. The board's responsibility is to ensure the safe
delivery of healthcare. He confirmed that it is the
responsibility of the board to ensure the agreement will provide
safe healthcare.
3:37:34 PM
REPRESENTATIVE SCHWANKE described license compacting across
several different license types. She asked if Dr. Taylor has
any concern about this compacting.
DR. TAYLOR, in response to questions from Representative
Schwanke, said concern about license compacting depends on what
the goal of the compact is. If the compact provides a good
framework for allowing more people to practice in Alaska in a
safe manner, that would be acceptable. He said he did not know
any examples of a licensing compact agreement that did not
provide a safe transfer of opportunity for a specific state and
license type.
3:39:20 PM
DR. TAYLOR, in response to a question from Representative
Ruffridge regarding medical board functions within general
provisions of medical care within Alaska, noted that he has only
been the chairman for a little over a month. He said he has
been in contact with the chair of the board of pharmacy, but he
has not had the opportunity to collaborate with other boards.
In response to a question about the Prescription Drug Monitoring
Program (PDMP), he said he thinks it has been a very helpful
program that provides a useful database for practitioners to
review prescription dispersion.
3:42:55 PM
CHAIR MINA opened public testimony on the confirmation hearing
for Dr. Taylor to the State Medical Board. After ascertaining
that there was no one who wished to testify, she closed public
testimony.
3:43:37 PM
CHAIR MINA stated that the House Health and Social Services
Standing Committee has reviewed the qualifications of the
governor's appointee and recommends that the following name be
forwarded to a joint session for consideration: Dr. Brent
Taylor, State Medical Board. She said that signing the report
regarding appointments to boards and commissions in no way
reflects an individual member's approval or disapproval of the
appointee, and the nomination is merely forwarded to the full
legislature for confirmation or rejection.
3:43:46 PM
The committee took an at-ease from 3:43 p.m. to 3:46 p.m.
[During the at-ease, Chair Mina handed the gavel to
Representative Mears.]
HJR 9-EXTEND AFFORDABLE CARE ACT TAX CREDITS
HJR 9-EXTEND AFFORDABLE CARE ACT TAX CREDITS
3:46:17 PM
REPRESENTATIVE MEARS announced that the next order of business
would be HOUSE JOINT RESOLUTION NO. 9, Urging the United States
Congress to extend enhanced tax credits for health insurance
premiums under the Affordable Care Act.
3:46:40 PM
CHAIR MINA, as prime sponsor, presented HJR 9 to the committee.
She said the goal of HJR 9 is to stabilize healthcare costs for
Alaskans on the individual marketplace. She provided a brief
background of the Affordable Care Act (ACA). She emphasized
that premium tax credits make premiums affordable for many
people. She provided a recent history of these premium tax
credits. She explained that if Congress does not expand the
extension of the enhanced ACA tax credits, premiums would
increase dramatically, forcing many people to be unable to
afford them.
3:53:09 PM
REPRESENTATIVE MEARS announced invited testimony.
3:53:21 PM
JARED KOSIN, President and CEO, Alaska Hospital and Healthcare
Association, explained that HJR 9 would make healthcare more
affordable and accessible for Alaskans who purchase coverage
through the federal marketplace. He emphasized how many people
would become uninsured if premiums were to increase. He
explained that lacking insurance funnels people towards
emergency rooms and hospitals for healthcare, where they cannot
be denied, which are the most expensive environments for care in
the entire healthcare system. He said that reducing access to
affordable healthcare services will ultimately increase the cost
of healthcare for all people in Alaska.
3:56:33 PM
REPRESENTATIVE PRAX asked how a tax credit could make the cost
of the insured go more than 100 percent.
MR. KOSIN responded that the numbers he sees are the amount the
premium would cost in the offset from the tax credit. He said
that if the tax credit goes away, there will be a destabilizing
effect on the market at large, doubling, or tripling premiums.
3:58:27 PM
LORI WING-HEIER, Director, Division of Insurance, Department of
Commerce, Community, and Economic Development, explained that
the tax credits are based on income and family size, and said
that these credits are reassessed when an individual files their
taxes.
REPRESENTATIVE PRAX asked if the tax credit could be more than
what an individual paid for the premium.
MS. WING-HEIER said that an individual would never receive more
in tax credits than what their total premium is.
REPRESENTATIVE PRAX provided an example to clarify how this tax
credit would work. He asked how an individual's premium could
go up more than 100 percent.
MS. WING-HEIER responded that a premium would not exceed 100
percent through the tax credits. She explained that if the
enhanced premium tax credits were not available, an individual
would receive less in a premium tax credit in 2026 than they did
in 2025.
REPRESENTATIVE PRAX asked if the enhanced tax credit would go to
the insurance provider or the insured individual.
MS. WING-HEIER responded that the tax credit would go to the
insurance company to pay the premium.
REPRESENTATIVE PRAX asked if the number of people purchasing
policies would decrease, causing the prices to increase.
MS. WING-HEIER responded that some people would have to pay
more, and that some would not be able to afford their insurance
even with a subsidy.
4:03:59 PM
REPRESENTATIVE RUFFRIDGE asked if the enhanced tax credits, with
a subsidy, have covered individuals who actually were above 400
percent of the federal poverty line.
MS. WING-HEIER responded that is correct.
REPRESENTATIVE RUFFRIDGE asked if individuals above 400 percent
of the federal poverty line would now have to pay for their
health insurance in full if it is not provided through some
other means.
MS. WING-HEIER responded that is correct.
REPRESENTATIVE RUFFRIDGE asked if the subsidy would remain for
individuals falling between 100 and 400 percent of the federal
poverty line.
MS. WING-HEIER confirmed that is correct.
4:05:53 PM
REPRESENTATIVE SCHWANKE asked if there is data to show what the
average savings on premiums per family was when these tax
credits went into place.
MS. WING-HEIER provided examples to show how families' premiums
would increase without the enhanced premium tax credits.
REPRESENTATIVE SCHWANKE asked what savings occurred prior to
these premium tax credits going into place. She said she does
not want to over generalize what the effect would be if these
tax credits go away.
4:09:37 PM
REPRESENTATIVE FIELDS asked about the income of people currently
benefiting from these tax credits. He asked if these
individuals would go without insurance if they were to lose the
tax credits.
MS. WING-HEIER responded that the recipients of these tax
credits are middle-income, and she is concerned about what would
happen to them without the tax credits.
REPRESENTATIVE FIELDS asked about premiums increasing for other
employers who now have a higher share of uncompensated care.
MS. WING-HEIER explained that hospitals will always see a
patient, regardless of their ability to pay. She said that if a
patient cannot afford to pay their hospital bill, that cost
affects "all of us," meaning that hospital prices must increase
to keep their doors open.
REPRESENTATIVE FIELDS asked about the conditions of rural
communities that have lost all hospital care, which he said
would happen if Medicaid expansion and enhanced premium tax
credits go away.
4:13:07 PM
MR. KOSIN responded that there would be a cost shift. He said
that there are such high insurance rates in Alaska because
healthcare costs have shifted onto private insurance companies.
He emphasized the importance of the premium tax credits.
4:14:58 PM
REPRESENTATIVE RUFFRIDGE said that there are 23,000 Alaskans
that are covered under some tax credit plan under the ACA. He
asked how many of those 23,000 fall above the 400 percent
federal poverty limit.
MS. WING-HEIER responded that she estimates there are 23,000
enrolled in the individual market. She said she would follow up
with how many of those qualify for premium tax credits, the
enhanced premium tax credits, or none at all because of their
income.
4:16:17 PM
AMBER LEE, Owner, Amber Lee Strategies, shared a personal story
of losing both her health insurance and her job at the same time
that she was diagnosed with cancer. She expressed her gratitude
that Alaska's Medicaid expansion insurance covered her and her
two children. She said she was able to enroll with marketplace
insurance under ACA because it prevents insurance companies from
denying people like her, who have preexisting conditions. She
emphasized the importance of small business owners in the
economic diversification of Alaska and said that losing these
tax credits would hurt their ability to continue owning their
businesses.
4:19:30 PM
The committee took an at-ease from 4:19 p.m. to 4:20 p.m.
[During the at-ease, Representative Mears handed the gavel back
to Chair Mina.]
4:20:09 PM
.
CHAIR MINA opened public testimony on HJR 9.
4:20:23 PM
TERI TIBBETT, Alaska Re-entry Partnership, explained that the
Alaska Re-entry Partnership supports HJR 9 because the tax
credits are currently helping people who are just re-entering
the workforce from incarceration. She explained that the
barriers that her clients face in achieving jobs with health
insurance.
4:22:26 PM
KATHARINA WOOFTER, Life and Health Insurance Agent, described
her experience connecting clients to individual marketplace
plans with subsidy, emphasizing the importance of these
subsidies. She provided examples of individuals' premiums with
and without these subsidies.
4:25:21 PM
TREVOR STORRS, President and CEO, Alaska Children's Trust, said
that the passage of ACA was pivotal in reducing the rate of
uninsured individuals in Alaska, including thousands of families
with children. He emphasized that when parents have health
insurance, their children will have it, and those children will
access care.
4:27:24 PM
ARIANE KELSEY, Senior Manager, AIDS Drug Assistance Program
(ADAP) and Quality Insurance, The Alaskan AIDS Assistance
Association (AAAA), explained that AAAA works with clients who
have no option for health insurance besides enrolling through
Alaska's health insurance marketplace with tax credits. She
emphasized that losing these tax credits would directly and
negatively affect ADAP in Alaskan.
4:29:10 PM
ELIZABETH NEWELL, representing self, shared a personal anecdote,
describing how she would need to drop her health insurance if
she lost her premium tax credits.
4:30:35 PM
SHELLIE GOODEN, representing self, emphasized the difficult
lifestyle choices that many would need to make if HJR 9 were not
passed.
4:32:42 PM
CHAIR MINA, after ascertaining that there was no one else who
wished to testify, closed public testimony on HJR 9.
4:32:50 PM
REPRESENTATIVE RUFFRIDGE asked about the total amount of tax
credit being paid out each year, by Alaska and the United
States. He said that with these tax credits, Americans are
essentially paying taxes to an insurance company. He asked if
that is an accurate analysis.
CHAIR MINA responded that Representative Ruffridge offered a
great way to think about this issue.
4:34:54 PM
MS. WING-HEIER responded that ACA helped individuals pay for
healthcare, but it did not address the cost of healthcare. She
said that in 2024, the premium tax credits for Alaska were
$385,000,000. She emphasized the viciousness of the cycle
regarding healthcare cost increasing, causing tax credits to
increase.
4:36:26 PM
REPRESENTATIVE RUFFRIDGE said that in 2024, individuals in
Alaska receiving tax credits received an average of $16,000 per
person. He asked about cost-shifting. He asked if cost-
shifting merely would allow the state to decide who makes that
money if the state is going to spend this money regardless.
MS. WING-HEIER responded that cost-shifting allows the state to
decide who makes and who spends this money. She provided an
example to emphasize the disproportionate amount of money that
patients are being charged for healthcare.
REPRESENTATIVE RUFFRIDGE said that he really struggles with this
resolution.
HB 14-REPEAL CATASTROPHIC ILLNESS/MED ASSIST
HB 14-REPEAL CATASTROPHIC ILLNESS/MED ASSIST
4:41:42 PM
CHAIR MINA announced that the next order of business would be,
HOUSE BILL NO. 14, "An Act repealing programs for catastrophic
illness assistance and medical assistance for chronic and acute
medical conditions."
4:41:50 PM
CHAIR MINA opened public testimony on HB 14. After ascertaining
that there was no one who wished to testify, she closed public
testimony.
4:42:17 PM
REPRESENTATIVE MEARS moved to report HB 14 out of committee with
individual recommendations and the accompanying fiscal notes.
There being no objection, HB 14 was reported out of the House
Health and Social Services Standing Committee.
4:42:43 PM
The committee took an at-ease from 4:42 p.m. to 4:45 p.m.
SB 60-ESTABLISH ME/CHRONIC FATIGUE SYNDROME DAY
SB 60-ESTABLISH ME/CHRONIC FATIGUE SYNDROME DAY
4:45:21 PM
CHAIR MINA announced that the final order of business would be,
SENATE BILL NO. 60, "An Act establishing May 12 as Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome Day of Recognition."
4:45:35 PM
SENATOR L?KI GALE TOBIN, Alaska State Legislature, as prime
sponsor, presented SB 60. She described the constituent in her
district who inspired HB 60. She paraphrased the sponsor
statement [included in the committee file], which read as
follows [original punctuation provided]:
Senate Bill 60 establishes May 12 as Myalgic
Encephalomyelitis (ME) Awareness Day to help spread
knowledge of the disease, the need for research and
appropriate medical care, and to support individuals
and their families living with Myalgic
Encephalomyelitis.
Myalgic Encephalomyelitis, also known as chronic
fatigue syndrome (CFS) or ME/CFS, is a serious,
chronic, neurologic disease affecting as many as nine
million Americans of all ages, including children.
ME/CFS causes dysfunction across all body systems that
severely impacts quality of life and ability to work.
ME/CFS often causes a lifetime of disability, with 75%
of people unable to work or attend school and 25% of
people housebound or bedbound. As many as 90% of
people with ME/CFS are undiagnosed. Covid has
increased the prevalence of ME/CFS three to five times
since 2020 with 50% of Long Covid cases meeting the
diagnostic criteria for ME/CFS. Long Covid is
affecting as many as 56 million Americans with an
estimated economic impact of $3.7 trillion dollars.
ME/CFS is underfunded relative to disease burden and
has no known treatments or cures. Experts and
advocates for years have been requesting increased
funding, research, medical education, and
multidisciplinary collaboration. Medical education
pertaining to ME/CFS is lacking. According to the U.S.
Center for Disease Control and Prevention most medical
schools in the United States do not have ME/CFS as
part of their physician training. This leaves the
average medical practitioner untrained and unprepared
to treat people with ME/CFS & associated diseases.
Establishing May 12 as Myalgic Encephalomyelitis
Awareness Day in Alaska mirrors the international
designation, chosen to memorialize the birth date of
Florence Nightingale, the English army nurse who
inspired the founding of the International Red Cross,
and who was believed to have contracted a chronic
immunological and neurological illness in her mid-
thirties and spent the last 50 years of her life
virtually bedridden.
This day of recognition will lead to increased
awareness of ME/CFS in Alaska. It is our hope that
this recognition will lead to increased funding for
research by the federal government and private
entities, directed clinical education of the disease,
and development of diagnostic testing and appropriate
treatments, resulting in better medical care for those
living with ME/CFS.
4:49:10 PM
CHAIR MINA announced invited testimony.
4:49:27 PM
DAVID PENN, MD, provided medical context for ME/CFS, explaining
the symptoms and possible triggers for the syndrome. He said
that increasing awareness of ME/CFS would improve the diagnostic
capability by increasing medical providers' ability to recognize
and understand the syndrome.
4:53:15 PM
HOLLIS MICKEY, as invited testifier, described her personal
experience with severe ME/CFS.
4:57:01 PM
SALLIE REDISKE, DPT, representing self, described her personal
experience with ME/CFS. She emphasized that ME/CFS is not rare
but is a rarely diagnosed disease.
4:59:53 PM
MERCEDES HARNESS, as invited testifier, described her personal
experience as the mother of a child with ME/CFS.
5:03:00 PM
MEGAN DAVIES, MD, as invited testifier, described her personal
experience with ME/CFS.
5:06:57 PM
CHAIR MINA opened public testimony on SB 60.
5:07:34 PM
SUSAN SHARE, representing self, testified in support of SB 60.
She shared a personal anecdote regarding her friend with ME/CFS,
describing the disease and how it has affected her friend's
daily life.
5:08:42 PM
SIMONETTA MIGNANO, representing self, testified in support of SB
60. She shared a personal anecdote regarding her friend with
ME/CFS, describing the disease and how it has affected her
friend's daily life.
5:10:27 PM
ENZINA MARRARI, representing self, testified in support of SB
60. She shared a personal anecdote regarding her friend with
ME/CFS, describing the disease and how it has affected her
friend's daily life.
5:12:55 PM
JAYBIRD OLIVER, representing self, testified in support of SB
60. She shared a personal anecdote regarding their friend and
neighbor with ME/CFS, describing the disease and how it has
affected her friend's daily life.
5:14:21 PM
FRANCESCA DUBROCK, representing self, testified in support of SB
60. She shared a personal anecdote regarding her friend with
ME/CFS, describing the disease and how it has affected her
friend's daily life.
5:16:19 PM
DONNA ADERHOLD, representing self, testified in support of SB
60. She described her personal experience with ME/CFS,
describing the disease and how it has affected her daily life.
5:18:53 PM
CHAIR MINA, after ascertaining there was no one else who wished
to testify, closed public testimony on SB 60.
[SB 60 was held over.]
5:19:33 PM
ADJOURNMENT
There being no further business before the committee, the House
Health and Social Services Standing Committee meeting was
adjourned at 5:19 p.m.