Legislature(2017 - 2018)BUTROVICH 205

02/21/2018 01:30 PM HEALTH & SOCIAL SERVICES

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Audio Topic
01:58:42 PM Start
01:59:08 PM SB174
02:25:15 PM Adjourn
* first hearing in first committee of referral
+ teleconferenced
= bill was previously heard/scheduled
*+ SB 174 PROGRAMS FOR PERSONS WITH DISABILITIES TELECONFERENCED
Moved SB 174 Out of Committee
-- Public Testimony --
+ Bills Previously Heard/Scheduled TELECONFERENCED
         SB 174-PROGRAMS FOR PERSONS WITH DISABILITIES                                                                      
                                                                                                                                
1:59:08 PM                                                                                                                    
CHAIR WILSON announced the consideration of SB 174.                                                                             
                                                                                                                                
1:59:23 PM                                                                                                                    
SENATOR  MICCICHE, Alaska  State Legislature,  sponsor of  SB 174                                                               
said the bill is puts forth  a philosophy about identity. It does                                                               
not  have  a fiscal  note.  People  used  to say  physically  and                                                               
mentally disabled Alaskans and the  bill changes that to Alaskans                                                               
with physical and  mental disabilities. This bill  is about their                                                               
active  participation in  decisions  related to  their own  care.                                                               
There   are  efficiencies   associated  with   that.  There   are                                                               
improvements to their quality of life for these individuals.                                                                    
                                                                                                                                
2:00:29 PM                                                                                                                    
KAITLYNN  STANSBERRY,  Intern,  Senator  Peter  Micciche,  Alaska                                                               
State Legislature,  presented SB  174 on  behalf of  sponsor. She                                                               
said SB 174  is the product of input from  over 200 people across                                                               
Alaska, including the Alaska Mental  Health Trust, the Governor's                                                               
Council  on  Disabilities  and Special  Education,  and  the  Key                                                               
Coalition  of Alaska.  All  persons deserve  to  be treated  with                                                               
respect   and  dignity.   Persons   with   physical  and   mental                                                               
disabilities  actively participating  in  the  programs they  use                                                               
enhances their  quality of life  and treatment. They  thrive when                                                               
participating  in the  social and  economic environment  of their                                                               
homes, communities, and Alaska. SB  174 enables the Department of                                                               
Health  and  Social  Services  (DHSS) to  take  a  more  flexible                                                               
approach to  the application of programs,  allowing Alaskans with                                                               
physical and  mental disabilities to participate  actively in the                                                               
systems of  their care.  These systems of  care are  the programs                                                               
they use daily. SB 174 provides  a unifying vision to assure that                                                               
available resources,  whether great  or small, are  allocated and                                                               
applied in a manner that  maximizes the contributions of Alaskans                                                               
experiencing disabilities in their communities.                                                                                 
                                                                                                                                
SENATOR  BEGICH said  he was  very pleased  to see  the bill.  He                                                               
asked what the  phrase flexibility means so that it  could be put                                                               
on the record and encourage employers to take advantage of it.                                                                  
                                                                                                                                
SENATOR MICCICHE said  he could say what it means  to him, but it                                                               
will  be more  meaningful coming  from  people who  are going  to                                                               
testify.                                                                                                                        
                                                                                                                                
SENATOR BEGICH said he'd also  like the testifiers to discuss the                                                               
different ways  this will increase  economic opportunity  for the                                                               
state.                                                                                                                          
                                                                                                                                
2:03:29 PM                                                                                                                    
CHAIR WILSON opened public testimony.                                                                                           
                                                                                                                                
2:03:50 PM                                                                                                                    
LIZETTE  STIEHR,   Executive  Director,  Alaska   Association  on                                                               
Developmental  Disabilities (AADD),  supported SB  174. She  said                                                               
the Alaska  Association on Developmental Disabilities  is a trade                                                               
association, a professional association that represents 47 dues-                                                                
paying  organizations, all  of whom  provide home  and community-                                                               
based  services for  individuals who  experience intellectual  or                                                               
developmental disabilities.  The association  has been  an active                                                               
and  strong  supporter of  this  shared  vision, which  brings  a                                                               
renewed  energy  and  excitement  to the  work  of  the  provider                                                               
community. The shared  vision reminds them of  why they dedicated                                                               
their professional lives to this  field. She mentioned that it is                                                               
a challenging time  for legislators, who are  dealing with fiscal                                                               
constraints,  which roll  down into  the field  and the  services                                                               
offered in  Alaska. The provider  world is feeling  many changes,                                                               
including SB  74, Medicaid  reform. It seems  so many  things are                                                               
going away or  being reduced. It has been a  trying time, but the                                                               
shared vision  work has  been a  ray of sunshine  and a  place of                                                               
excitement and  enthusiasm. She loves  the question of  what does                                                               
flexible mean.  It means people  have a right to  direct services                                                               
they would  like to  have, not just  what has  been traditionally                                                               
offered or has  been a system of support. The  economic impact is                                                               
that  they work  with what  people would  like to  have in  their                                                               
lives,  they want  to  be  in the  community.  One way  inclusion                                                               
happens  is   through  unpaid  or  natural   supports  that  then                                                               
economically helps the community  through inclusion and the price                                                               
of  services. She  thanked Senator  Micciche  for sponsoring  the                                                               
bill. She said those in the field are very excited about it.                                                                    
                                                                                                                                
2:07:50 PM                                                                                                                    
MICHELE  GIRAULT,   Board  Member,   Key  Coalition   of  Alaska,                                                               
supported SB 174.  She said she is a guardian  of two individuals                                                               
who  experience disabilities.  She  appreciated Senator  Micciche                                                               
reaching  out  to  create  a value-driven  bill  that  puts  into                                                               
statute their  vision of what life  should be like for  those who                                                               
experience disabilities.  It is  really people  first. Regardless                                                               
of fiscal  impact, the idea  is that Alaskans will  support those                                                               
among  them who  experience  disabilities in  a  way that  honors                                                               
their  desire and  right to  have  meaningful lives.  Flexibility                                                               
means that in  these dynamic times all  the different departments                                                               
of the  state work  together to  support people,  whether someone                                                               
has  intellectual,  behavioral,   or  mental  health  challenges.                                                               
People  might need  more  of  one kind  of  support  and less  of                                                               
another. From  a consumer's  point of  view, flexibility  means a                                                               
person may  need a support in  one moment and then  can later let                                                               
go of that  support. The bill puts into statute  a framework that                                                               
allows departments  and stakeholders  to come together  to assure                                                               
individuals will  have opportunities  to create  meaningful lives                                                               
for  themselves. This  is  one  of the  platform  issues for  Key                                                               
Coalition in their planned visit next week.                                                                                     
                                                                                                                                
2:10:40 PM                                                                                                                    
JIMAEL  JOHNSON,  Program  Officer, Alaska  Mental  Health  Trust                                                               
Authority,  supported  SB  174.  She said  the  trust  exists  to                                                               
advocate  on  behalf of  trust  beneficiaries  and to  prioritize                                                               
policies,  practices,  and  funding   for  strategies  that  help                                                               
improve the  lives of  beneficiaries. The  beneficiary population                                                               
includes  Alaskans with  mental illness,  addiction, Alzheimer's,                                                               
dementia,   traumatic   brain   injury,  and   individuals   with                                                               
intellectual or  developmental disabilities. The  trust advocates                                                               
for crucial  services for the most  vulnerable population through                                                               
community-based  services.  Community-based services,  especially                                                               
when person centered  and directed, reduce the level  of need for                                                               
costlier institutional  care. The goal  of the  trust is to  be a                                                               
catalyst for change  and improvement in the  state's continuum of                                                               
care. SB  174 is  a visionary  framework to  increase opportunity                                                               
and improve the quality of  life for individuals, their families,                                                               
and  full  communities.  It   elevates  the  person  experiencing                                                               
disability to  more actively participate and  determine their own                                                               
community-based care and  thus more fully direct  their lives and                                                               
wellness.                                                                                                                       
                                                                                                                                
2:13:06 PM                                                                                                                    
MAGGIE  WINSTON, Chair,  Governor's Council  on Disabilities  and                                                               
Special  Education, supported  SB 174.  She said  she works  at a                                                               
center  for independent  living and  most importantly,  she is  a                                                               
person  who  experiences  a significant  disability.  A  flexible                                                               
system can literally  mean the difference for her  getting out of                                                               
bed  in the  morning or  being able  to go  to work.  This vision                                                               
enables  person-directed   care  and   culture.  This   is  super                                                               
important,    especially   for    individuals   who    experience                                                               
disabilities.  It  gives more  control  in  living the  life  she                                                               
directs and she  chooses. They have in statute  the verbiage that                                                               
enables them to be flexible and live a normal, autonomous life.                                                                 
                                                                                                                                
SENATOR  MICCICHE  noted that  Ms.  Winston  who was  before  the                                                               
committee two  weeks ago was  the inspiration for the  bill. Some                                                               
physical limitations may  seem debilitating, but they  are not an                                                               
impediment  to  absolute success  in  one's  life. They  are  not                                                               
asking  for  more  resources.  They are  asking  for  more  self-                                                               
directions  so people  like  Maggie can  continue  to thrive  and                                                               
inspire the rest of Alaskans.                                                                                                   
                                                                                                                                
2:15:48 PM                                                                                                                    
DAVE   LEWIS,  System   Advocate,   Independent  Living   Center,                                                               
supported  SB  174.  He  said  they support  the  bill  and  what                                                               
everyone else said previously.                                                                                                  
                                                                                                                                
2:16:27 PM                                                                                                                    
MICHEAL   BAILEY,  Chief   Financial   Officer,  Hope   Community                                                               
Resources,  supported SB  174. He  said the  systems and  service                                                               
delivery  are often  siloed, specialized,  and governed  by their                                                               
own  regulations. This  limits flexibility.  This unified  vision                                                               
engages a  collaborative system  of paid  and unpaid  supports to                                                               
enhance abilities,  not just to  address disabilities.  This bill                                                               
allows flexibility in  being able to adjust  without a regulation                                                               
rewrite.  As they  do  that  they are  better  stewards of  state                                                               
funds.  His daughter's  team won  the  Anchorage School  District                                                               
middle school  Battle of the  Books competition. A member  of the                                                               
team has a physical disability  and listens to audio books. She's                                                               
a  valuable  member of  the  team  and  an inspiration  to  other                                                               
people. Her  team members were  her natural supports. That  is an                                                               
example of  what they  want to  promote. The  approach in  SB 174                                                               
moves  away   from  some  traditional  medical   models  to  more                                                               
integrated,   meaningful   lives  and   upholds   person-centered                                                               
directives  from the  federal government  that  are necessary  to                                                               
access Medicaid  funds. This  bill benefits  everyone, regardless                                                               
of  the  level  of  financial  support  available,  by  promoting                                                               
partnerships and new  models of support guided  by a value-driven                                                               
philosophy. People  have heard the  saying it takes a  village to                                                               
raise  a  child. It  takes  a  community  to help  Alaskans  with                                                               
disabilities lead meaningful lives.                                                                                             
                                                                                                                                
2:19:08 PM                                                                                                                    
PATRICK  REINHART,  Executive  Director,  Governor's  Council  on                                                               
Disabilities  and Special  Education, supported  SB 174.  He said                                                               
they view this as a culture  change. A few years ago, they pushed                                                               
through   similar  aspirational   language   in  statute   around                                                               
employment first.  They wanted people  with disabilities  and the                                                               
people who  support them to look  at the opportunities to  lead a                                                               
meaningful life  through employment.  It takes a  long to  make a                                                               
culture  change and  shift  in  a large  system  of services  and                                                               
supports like  they have in Alaska.  A few years later,  they are                                                               
starting  to see  a  cultural shift  occurring.  When people  are                                                               
making plans  of care for  people with  significant disabilities,                                                               
the question "What do  you want to do when you  grow up" is asked                                                               
more often.  This also  is a cultural  shift--more and  more they                                                               
are looking  to the individual  about their hopes and  dreams and                                                               
desires,  which also  means  allowing them  to  take some  risks.                                                               
People   with   developmental    disabilities   need   the   same                                                               
opportunities  to  take risks.  The  bill  puts  it back  on  the                                                               
individual's  plate  and  that  comes  with  responsibilities  to                                                               
direct their own care and lives.                                                                                                
                                                                                                                                
2:21:29 PM                                                                                                                    
CHAIR WILSON closed public testimony.                                                                                           
                                                                                                                                
SENATOR GIESSEL thanked Senator Micciche  for moving the dial for                                                               
Alaskans  with disabilities.  Patrick Reinhart  talked about  the                                                               
challenge  of self-determination  and decision  making, but  also                                                               
the gratification  of being able  to do  that. It reminds  her of                                                               
the House  bill a few  years that let Alaskans  with disabilities                                                               
participate in  the federal  program of  ABLE accounts.  They can                                                               
save their own money to use as  they see fit. The bill is another                                                               
step in that direction, so bravo to Senator Micciche.                                                                           
                                                                                                                                
SENATOR MICCICHE said  folks are thanking him, but  he knows they                                                               
will pile on as cosponsors  in recognition of the capabilities of                                                               
those who have challenges.                                                                                                      
                                                                                                                                
2:23:12 PM                                                                                                                    
CHAIR  WILSON asked  if  there were  amendments.  There being  no                                                               
amendments,  he  entertained a  motion  to  move  SB 174  out  of                                                               
committee.                                                                                                                      
                                                                                                                                
2:23:21 PM                                                                                                                    
SENATOR VON  IMHOF moved to  report SB 174,  version 30-LS1258\D,                                                               
from  committee  with  individual  recommendations  and  attached                                                               
fiscal notes.                                                                                                                   
                                                                                                                                
2:23:35 PM                                                                                                                    
CHAIR WILSON announced that without  objection, SB 174 moved from                                                               
the  Senate Health  and Social  Services Standing  Committee with                                                               
the understanding  that Legislative Legal was  authorized to make                                                               
any necessary technical and/or conforming adjustments.                                                                          

Document Name Date/Time Subjects
SB 174 30-LS1258 D.pdf HHSS 3/29/2018 3:00:00 PM
SHSS 2/21/2018 1:30:00 PM
SB 174
SB 174 Sponsor Statement.pdf HHSS 3/29/2018 3:00:00 PM
SHSS 2/21/2018 1:30:00 PM
SB 174
SB 174 Fiscal Note.pdf HHSS 3/29/2018 3:00:00 PM
SHSS 2/21/2018 1:30:00 PM
SB 174
SB 174 Supporting Documents.pdf HHSS 3/29/2018 3:00:00 PM
SHSS 2/21/2018 1:30:00 PM
SB 174
SB 174 Public Input.pdf HHSS 3/29/2018 3:00:00 PM
SHSS 2/21/2018 1:30:00 PM
SB 174